Future Unknown For Caregivers Of Post-9/11 Veterans

Ken and Patti Katter have learned to make adjustments to live with his memory loss due to traumatic brain injury.

The wars in Iraq and Afghanistan have drafted more than a million family members into caring for returning wounded and injured troops. They’ve been called “Hidden Heroes” – the military caregivers of Post-9/11 veterans.

They are mostly young spouses with young families or aging parents who never expected to take on the role.

Patti Katter’s world changed the night her husband returned from Iraq. Army Sergeant Ken Katter survived two roadside bombs that hit his truck in May 2007 with what were thought to be minor injuries, a concussion and ruptured eardrums. So, he remained in combat for his full 15-month deployment and didn’t come home until October 2007.

“We had dinner together and probably within an hour, he didn’t remember eating. I thought he was just very sleep deprived because he’d just gotten home. So I just kind of blew it off a bit,” Patti Katter recalled about his first night home from Iraq.

Patti Katter has ordered and managed her husband’s medications for almost 10 years and going.

But that same night, Ken Katter had a seizure while sleeping and without any time to prepare Patti Katter was thrust into the role of military caregiver.

“I really put my foot down and I said you need to go to the doctor,” she said. “He was having not only memory issues but he was in a lot of pain. He was frustrated very easily.”

Her husband saw a doctor about a week later. Over a series of months and medical appointments, Ken Katter was diagnosed with a traumatic brain injury, a blown disc in his neck, a back injury, hearing loss, the list goes on from complex symptoms such as seizures to simple things like he can no longer remember how to write his name in cursive.

He was medically retired from the military in 2010 after serving in the U.S. Army since 2005 and the Marines from 1990-1994.

Inside the Katter home just northeast of Sarasota, a bouquet of bright red roses sat prominently in the kitchen pass through. Patti bought them for herself.

“It’s important to love yourself,” she said. “Ken’s not, he doesn’t emotionally attach anymore. So I’ve learned. I know he loves me. I have no doubt about that, but I’ve also learned to love myself better.”

Ken Katter took up wood carving as part of his rehabilitation. His wife says his brain injury has made it more artistic.

Ken Katter’s “self portrait” carved into a walking stick.

Ken Katter’s “invisible” injuries also left him with balance problems and other medical issues that prevent him from holding down a job or doing even small household tasks like hanging ceiling fans.

But he counts himself lucky. He has all his limbs and can walk. His seizures are under control so he can drive again – even though he has a tendency to get lost, he now uses GPS to guide his travel.

For the last decade, Patti Katter has managed her husband’s medical appointments, medications and rehabilitation. She initially homeschooled their three children so it was easier to see the myriad of doctors. And she took care of the household too.

Then three years ago, the stress overwhelmed her.

“I wasn’t suicidal, but I was in a dark place. Not only was I dealing with being a caregiver, I had a mom who had cancer and my dad was unhealthy,” she said.

She learned to care for herself and found a job with a non-profit, Hope for the Warriors. She now works from home helping other military caregivers navigate the system. And she is a fellow with the Elizabeth Dole Foundation that advocates for military and veteran caregivers.

“So many of these young spouses in their 20s and 30s (are) suddenly realizing that they’re going to be caregivers probably for the next 50 years if not their entire life and no one was handing them a manual,” said Steven Schwab, executive director of the Dole Foundation.

The Dole Foundation did a scientific survey of military and veteran caregivers to find out what they needed. The Hidden Heroes Report found that respite care topped the list, followed by the need for mental health support and training.

The Katter family: Hunter, Savanna, Patti, Ken, and Ashlay.

“These caregivers – especially the Post-9/11 caregivers – are struggling from high rates of depression and anxiety. They’re incredibly isolated,” Schwab said. “They feel alone and in most cases are alone without a support system.”

That’s why former U.S. Sen. Elizabeth Dole started the foundation. It does research and offers innovation grants to organizations, caregiver fellowships, and a national registry of more than 200 vetted caregiver resources.

The Department of Veterans Affairs also has a special program for caregivers of Post-9/11 veterans severely injured in the Iraq and Afghanistan wars. It provides financial help and other services.

“The majority of our veterans in this program do have post traumatic stress, mood disorders and TBI,” said Cynthia Fletcher, a caregiver support coordinator at Tampa’s James A. Haley VA. “So, the caregivers are struggling with those behavioral disturbances, those mood disturbances which can be very challenging.”

Fletcher said the VA also operates a caregiver support line, 1-855-260-3274, for military caregivers of veterans from all eras. She said it received more than 57,000 calls last year.

Ken Katter served four years in the Marines, and more than a decade as a police officer before rejoining the Army.

And the VA secretary asked Congress in March to expand the Post-9/11 caregivers program. Of particular concern to caregivers like Patti Katter is what happens 20 or 30 years from now should her husband’s memory problems worsen and she is unable to cope.

“Or what if something happens to me, who is going to take care of him?” Patti Katter asked. “Our kids have been very resilient. They love their father, but I don’t want that to fall on their plate.”

The VA estimated about 4,000 caregivers would qualify for its Post 9-11 program. But almost 25,000 were enrolled within four years. So, the VA has been scrambling to fill the immediate demand leaving little time to consider the long-term needs of veteran caregivers.

You can listen to their story which aired on WUSF 89.7 FM as part of the American Homefront Project.

West Point Women Reflect On Marines’ Nude Photo Scandal


Laura Westley and Carol Barkalow are both West Point graduates and authors of memoires about their military experiences.
Bobbie O’Brien / WUSF Public Media

The recent scandal over Marines sharing nude photos of female Marines online hasn’t demoralized some women veterans. Two female West Point graduates from Florida refuse to let it overshadow recent gains women have made in the military. And they have some ideas on how to prevent similar incidents.

The United States Military Academy at West Point didn’t even accept women in their ranks until 1976. Carol Barkalow was in that first class. She graduated in 1980 and served 22 years in the Army.

Barkalow remembers how female cadets were hazed and harassed back then. But she said women have made progress since, even in light of the nude photos.

“There is some good news with this, even though what they did was horrible,” Barkalow said. “Now, we have the social media and the interest to try at last to get the military to understand that we are a vital part of this force. We are never going away and some very basic things have to change within our military.”

West Point has come a long way over the last 40 years, she said. It now has a female dean of students and female commandant.

“But what we have to have – we have to have women, general officers admirals in every rank in each of the services. So much so that, when you walk in a room, it’s not just one woman, it’s not just two women, it’s a number of women sitting at the table and have the ability to influence our future,” Barkalow said.

Barkalow, who lives in Pinellas County, is friends with 2001 West Point graduate Laura Westley, who grew up in New Port Richey. Continue reading

Veterans Get Free Training For “New Collar” Jobs

About a dozen veterans took part in the intense week-long training and certification offered for free by IBM. The first session of 2017 was offered in Tampa, FL.

It’s estimated the high tech industry will create more than 200,000 “new collar” jobs in the next three years. To fill those positions, IBM is tapping into a workforce that’s already well trained – veterans.

“We need to get people to hit the ground running and be productive,” said Tampa IBM executive Stuart Bean. “And you just can’t fill them unless you have people who are already disciplined, already trained, mature enough, (and) can hit the ground running.”

Tampa IBM hosted the first veterans session of 2017 followed by a free veterans’ session this week in at Asher College in Las Vegas and April 3 in Pittsburgh, The Tower at PNC Plaza, 300 Fifth Avenue. Additional sessions are available in Philadelphia, Houston and Fort Hood, Texas and several other cities. Continue reading

Looking For Future Air Force Leaders In Technology

Middleton High School JROTC cadet Lt. Col. Carlos Martinez and Coast Guard pilot Justin Neal during STEM Day at MacDill AFB.

Tampa’s MacDill Air Force Base put on an impressive show of skill and threw in a bit of fun for some 1200 school students who visited the base this month to check out military careers linked to science, technology, engineering and mathematics.

“Never before in our nation’s history have we depended more on technology and the application of technology to win – not only in the air – but in space and in cyber space,” said MacDill Commander Col. April Vogel. “You know our mission is to fly, fight and win. So, we need to create people who can do that. And there are some amazing young minds here today which is why this is so special.” Continue reading

Growing A Community Of Farmer Veterans

Raising chickens is one of many skills veterans will learn at the Veterans Garden under construction in Tampa.

Raising chickens is one of many skills veterans will learn at the Veterans Garden under construction in Tampa.

There’s a growing movement to help veterans transition from the battlefield to a more bucolic setting. Whether it’s a community agriculture initiative or a functioning farm – researchers are finding that raising food can offer veterans both a therapeutic and an economic value.

A garden where veterans can learn to work the land and grow food is under construction at The Sustainable Living Project, on Sligh Avenue, just across from Tampa’s Lowry Park Zoo. Continue reading

A Memorial Day For Military, Veterans Killed By Suicide

Ellsworth Tony Williams veterans counseling veterans

Ellsworth “Tony” Williams, founder and CEO of Veterans Counseling Veterans.

The nation will remember those killed while serving their country on Memorial Day in just over a week. But a local group called Veterans Counseling Veterans wants people to think about another kind of Memorial Day – one honoring those who served in uniform and died by suicide — and is planning such as service this Sunday in Tampa at American Legion Post 5.

The Veterans Counseling Veterans memorial service is an example of the many different efforts to eliminate the stigma of suicide and improve veteran suicide prevention from Congress to local counselors.

One of the challenges some advocates say they face is a number: 22. A 2012 VA report estimated 22 vets a day die by suicide, and it’s often quoted in media reports. But that data is questionable because it didn’t include all 50 states. And it’s mistakenly associated with only Post 9-11 veterans. Continue reading

NPR Series Shines Light On VA ‘Choice’ Program

qlawrence-40be02cb27d75e64aa42151a71fa887f87bd3c5a-s400-c85

Quil Lawrence – NPR reporter. Photo courtesy of NPR.

National Public Radio reporter Quil Lawrence took the lead on an investigation into the Veterans Health Administration plan to lessen wait times at VA medical clinics and hospitals by allowing veterans to see private medical providers.

It was called the “Choice Program.”

However, as the title of the first three stories shows, the hastily assembled program left veterans without more medical options: “How Congress And The VA Left Many Veterans Without ‘Choice.'”

Another part of the investigation looked at how attempts to improve the system has instead prolonged wait-times for veterans trying to get a medical appointment: “Despite $10B Fix Veterans Are Waiting Even Longer To See Doctors.”

 

 

%d bloggers like this: